Picks-at-Flies's Cystic Fibrosis Blog

I suffer from the genetic condition Cystic Fibrosis. I generally keep myself comparatively well with Western antibiotics (and steroids, and vitamins and...), Osteopathy (generally to tackle tightness on the lungs) and Acupuncture. Unfortunately I tend to lose track of how I was behaving this time last year so I have started this blog to help me keep track of things. You are also welcome to look. For more on Cystic Fibrosis see the CF Trust website http://www.cftrust.org.uk.

Articles: Chinese medicine, CF and Me :=: Another year on :=: Top ten ways of staying healthy
Reference: Description of herbs :=: List of herbs :=: About this blog


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> pwcf.com
A "fan" site created by People With CF. Highly recommended.

> CF Trust
Official site for this excellent British charity. Includes extremely well populated forums - highly recommended.

> What is Cystic Fibrosis?
A pictorial guide to the key parts of CF and to living with it.

> Cystic Fibrosis Medicine
A somewhat thin internation site for CF patients and specialists.

Other blogs

> Breath of Life
Another CF blog, rather more complete than mine!

> Cystic Fibrosis and Me: A Personal Journey
(Clockwatcher sadly passed away 2006; the site seemed to follow him)

I seem to have lost my links to other CF blogs. If you want yours added, give me an email.

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Mon, Feb 20 2006

I wrote the following to my colleagues at work, the week after I went to see a rugby international. I kept it because it fairly describes my condition at the time:


Over the last couple of months it became apparent that the new house's dryness has been giving me problems and that my lungs have not been clearing properly. We finally hit on a herbal formula to clear them 3-4 weeks ago and since then most of my energy has been going into clearing them. This meant my reserve energies have been somewhat low.

Last Tuesday night I sweated out most of a fever, which was gone by Friday (foolishly I worked on Wednesday, but that is another story).

By Wednesday, my sore throat and sinusitis which had been brewing started hitting me hard. On Thursday night I realised the sore throat was Thrush and I started taking some lozenges I had for it, but for two days I could not bring myself to eat anything but soft food.

The final kick came on Friday, when one of my eyes went completely bloodshot - possibly conjunctivitis.

The result of these, and the various treatments I was taking for them, left me not feeling up to much.

So now it's Monday. My throat is mostly better, my sinus is tolerable, and my eye is somewhat better (I am seeing someone about it later). There is no sign of the bug which caused the fever. A week of not concentrating on my lungs (and no real exercise) has set me back a bit, but I can live with that.

How soon I come back probably now rests on my last remaining treatable condition - my eye: if it is mostly fixed, of if new treatment for it is innocuous, I would hope to be back in a day or two. If my eye starts irritating again, I won't be able to build up my reserves AND sort out my lungs.

Anyway, that's my view at this point in time


Indeed I was back at work the following week and everything cleared up.

by Picks-at-Flies  Comments

Posted at:Tue, Apr 18 2006 8 AM